http://www.youtube.com/watch?v=WbN0nX61rIs
Listening to some music today, I came across the song "Shake it out" by Florence + The Machine. I would highly recommend it, and it inspired me for this post. Above is the link to the song, hope you like it!
Today was my weekly trip to S20 for a check up on my blood counts. It was a treat to have my little bro with me, Joe hasn't been able to come to one of my check ups because he's usually at school. But, he is on spring break now so it's fun hanging with him during the day. Just as expected, my blood counts are extremely low, as this marks "day 14" after my last treatment, when my counts are expected to be at their lowest. I am at 0.10 neutrophils, and anything below 0.5 is considered "neutropenic" or extremely susceptible for infection. I have virtually no immune system right now, so I will be laying low for the next few days or so! Hand sanitizer, masks, and lots of hand washing have taken over the house once again but I understand because it's necessary. I don't want to end up in the hospital with a fever like last time! Overall though, I am extremely happy to report, I AM FEELING GREAT! I don't want to jinx myself, but I feel completely "normal" again and am eating well! I feel like I can do anything right now, like I am healthy again. Soon enough, that will be me again, no doubt.
In the song "Shake it Out," some lines of lyrics stuck out to me...
"It's always darkest before the dawn." Today I also found out some news I wasn't expecting. It's my own fault, but in my mind, I painted a picture of my recovery from surgery that was completely different than the reality I am facing. I am one month away from surgery to remove the tumor (details of surgery to follow soon!). In my mind, I thought that if I am getting a knee replacement (most likely) that I would be walking shortly after to make sure nothing gets too stiff in healing. I was faced with the reality that this is not true whatsoever. I will be in a long brace to keep my leg completely still for a few weeks. I was painted the picture that I will be in a wheel chair for most of the summer, which I wasn't expecting. I will likely be able to begin to learn to walk again around the time that my treatment is all over in the middle of September, but nothing is for certain. I know it's my own fault, but I guess I just wasn't prepared to hear that my recovery will take a lot longer than I expected. "It's always darkest before the dawn." Lots of hard times to come, pain, frustration, disappointment, the darkest is yet to come. But, the dawn comes after. The sun will come out again, it always does. The dawn WILL come. Gosh, being on crutches and pretty immobile since January, I am so looking forward to taking my first baby steps walking again when I am cancer free. It seems like so far away but I'm always going one step at a time. The hardest times are coming but right after them, the dawn will rise. I will recover, even if it is longer than I expected.
"It's hard to dance with the devil on your back, so shake him off, shake it out."
Worn down, and tired of this, I often find myself facing the demons I'm battling with a heavy heart. Literally, I love to dance and it's a great release for any stress or frustration, but sometimes I am not able to dance. I get worn down with my battles, the devil I am facing, and give up. The reason I love this song so much is because it reminds me to shake him off. To stop worrying about my problems and to dance again. It's hard to live a life of sadness and troubles that constantly worry and frustrate us. It's hard to be so down, so shake it off! Think about all the good things going for you and learn to dance again. Learn to have happy days and please live each moment to the fullest, nothing good comes from your "devils" wearing on your back.
Tonight I am a little disappointed because I am not at my end of the year team banquet for Saintsations. I miss my team very much, but I am there in spirit! I dance for you.
Tonight, for me, shake the devils off your back, even just for a moment, please learn to dance again. Love the life you live and try to appreciate all the small things. It's always darkest before the dawn. Sending you all the love in my heart and wishing much peace to you all.
First time commenter from Portland, via your friends in KC. I'm following your blog, pulling for you, and send all sorts of good cancer-busting thoughts your way.
ReplyDelete:-) Em ... nothing is your "fault". Why on earth should you know what recovery from knee replacement is like? Take this bits at a time (it would be too overwhelming all at once anyway). Today is the day you learned the recovery, like the rest of this, is longer than you'd hoped. The upside is you're going to rock that, too, baby. You'll be dancing again. It doesn't seem like soon, but you will. Love from Kansas! xoxo
ReplyDeleteYou're incredible! May God Bless you! Praying for you daily.
ReplyDeleteWhat a great reminder to end this day with. I promise to shake off some of the "devils" I've been carrying around on my back and do a little dancing tonight; for you Em. Glad we were able to see your pretty face via skype at the banquet tonight! Lots and lots of love!
ReplyDeleteAbbs
P.S. I love that you call me that.
This is one of my absolute favorite songs! Now every time I hear it I will think of you! :) I really enjoyed this post and how you dissected the lyrics so eloquently. You are incredible Emmy, a true inspiration to all! Keep on fighting, we love you!!!
ReplyDeleteNicki Shovlin
Once again, Emily, you have written a very inspiration entry! Your trial does help the readers of your comments keep life's "troubles" in perspective. Your entry reminds me of the Lord of the Dance theme song, the lyrics to which can be found at http://celtic-lyrics.com/lyrics/309.html. Coincidently, this song was sung at Easter mass at Gesu. Actually, I don't think its a coincidence. Rather: "It's not odd, it's God."
DeleteMay you continue to dance with the Lord as those of us here in the Mackay household keep storming heaven with prayers for you and your family!
Love and peace,
Mrs. Mackay
We don't know each other but each and every one of us faces our own demons much like you and everyone else I am facing mine and I burst out into tears because you are the epitome of strength and knowing how to shake off any demon. This blog is outstandingly helpful, you are beautiful and if you haven't already heard these words... you alone have changed my life. Get well soon, friend.
ReplyDeleteHi Emily,
ReplyDeleteI know you want the recovery to go very fast and that is not usually the case; but you will find a way to accept that is going to take a little longer than you thought; the goal is the same tough and that is what you have to keep in mind; a few weeks ealier or later than expected but you will get there; just be very patient. Keep enjoying one day at a time especially if you're having a good day. Don't look at your calendar that much. Concentrate on each phase of the treatment and it will go faster, believe me. Summer will help you be more entertained.
I will be praying for patience, all right? Don't get too disa ppointed , I know it is hard not to be able to control your time but it will happen trust me!
I'm gald you're feeling good and you are able to eat.
Love
Ana Pozuelo
Well, my dear Emily, you continue to amaze me! (Mrs. Kurtz) I have watched that video a couple of times and you certainly did pick the right lines from the song. Know that we pray for you every day, many times a day, and prayer is very powerful. Know that you have the support and love of so many who at any given moment, if you call, we are there. Know that we understand your disappointment in realizing a longer recovery, but it is recovery - so that is huge! Know that the Lake is completely wheelchair accessible from the brown house lower level right down to the dock and you will be there this summer, many times we hope, and your family, too. Know that the Kurtz's love you and are there for you and your family! God bless.
ReplyDeleteI am SOOOO happy you are feeling back to "normal" again! And i absolutely love the song you posted ;)
ReplyDeletexoxo Jackie Cook
Emily,
ReplyDeleteI hope this week's treatment goes as smooth as possible!
thinking about you!
Love
The Pozuelos