Thursday, March 8, 2012

"Nobody said it would be easy" - Coldplay

It is nurse DADDY-O!

After such a wonderful day yesterday, we were brought back to reality when then nurses hooked up the IV of Methotrexate.  Just the sight of the fluorescent yellow fluids dripping through the IV reminded us of the intensity of the drugs needed to wipe out the little c.

Emily has had better nights.  Once the infusion was complete, the nausea came on strong and it turned out to be a restless night for Emily and Jane, who stayed the night. When I made it down to the Clinic in the morning, I was happy to find Emily sleeping. It didn't take long however, for me to be reminded of the battle her body is in.  She awoke for another trip to the bathroom and a quick grab of the bedside bucket.  After some more nausea meds, the lights have been turned down and a sign was posted on her door, "please let Emily rest". She has been sleeping all day with many of her favorites songs being played on her "chill" playlist.

I was struck by the Coldplay tune being played while I was rubbing her back as she clenched the bedside bucket. The chorus of the song kept repeating: "nobody said it would be easy."  Ain't that the truth.  I read her blogs everyday.  In many of them she makes it seem so easy, but I am hear to tell you that it is not.  My eyes continue to puddle watching our little Emily, with her head shaved and "blankie" in hand, look so beautiful while these incredibly strong drugs flow through her body.  Rest is is what she needs today.  We need to keep the healthy cells healthy, while the little c gets destroyed. GAME ON!!!

Emily always concludes with "keep your heads up and please keep smiling."  Before I conclude, I just want to thank you all for helping us do the same. Thanks to everyone for the love and support. Your outpouring of encouragement about the picture she posted yesterday was very well received. It really helped her remain fearless heading into treatment last night. She and Mackenzie are very fortunate to look so much like MOMMA.  To Emily's so very special friends at SLU...the t-shirts look fantastic. I definitely want the shirt with the message that starts with the letter "F".  Thanks to all of our families including: our GESU family, our Walsh family, our SLU family, our JCU family, our ABAIS family, our St  Ignatius family, our Kansas family (that is you Jenn), our families in Washington, Texas, Vegas, Florida, Arizona, New Jersey, New Jersey, Massachussets, Italy, Spain (Judit), and all our other families worldwide sending prayers and good energy Emily's way.  Teamevans has never been stronger...or had so many members. We love you all.

Tomorrow will be new day.  All things considered, we really have no reason not to "keep our heads up and keep smiling".  Much peace and love to you all.

GAME ON!!!
Nurse DADDY-O


6 comments:

  1. beautiful.
    i love you so much dad, you are my rock
    kenzerton

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  2. Puddling eyes over here, too! You guys are amazing, and I very nearly messaged Em's boyfriend yesterday to see if I can pick up a t-shirt on the way to Ohio on Saturday. You are ALL so loved. I cannot wait to see you, and in the interim, I continue to send love from Kansas. xoxo

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  3. Hola Daddy-o!
    We know that it is not as easy as she sometimes painted. We are also very worried for her because it is a really hard process but finally it will be the best for her.
    EVERYONE KNOWS SHE CAN DO IT! and she has being like a star until now.
    We think EVERYDAY with all of you. My family keeps asking me if you have wrote in the blog and I translate it to them.
    My mum says that Emily looks so pretty in the picture, that the best part is the smile and that she looks like Sidney O'connor. Also says that "the people who is beautiful, keeps being beautiful".
    Thank you for being so brave everyday and write this blog. We apreciate it!
    Love and kisses,
    Judit

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  4. Hi team Evans,
    My thoughts are with you today! I'm praying for an better night today and a better day tomorrow!
    Love
    Ana Pozuelo

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  5. Beautiful Em and Team Evans,

    Strength is your middle names! I think of all of you everyday and can't imagine that this is happening. We send our love, prayers and smiles.
    Keep your heads up,
    Love
    Cousin Lori

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  6. Lots of extra love and hugs headed to Teamevans, and especially beautiful Emily. Our thoughts are with you during this treatment. Know you are all loved!!
    The Sommerfelds

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